mvrf.org using stolen personal information for mailings?

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Posted by Jim on Feb 6, 2008 363 views

In the mail I get this flyer, 8 1/2 x 11 card stock folded into a 4 sheet flyer. It is from Mary Betty Roeder 94 Brick Road #303 Marlton, NJ 08053. I do not know Mary, or how she got my name. The material has been sent with Free MATTER for the BLIND or HANDICAPPED as the postage stamp. Now I am neither, so I don’t know how we are getting this. On the card, PRINTED, is my name and address.

Now I called 866-462-2852 the toll free number for mvrf.org on the flyer. At that time, the number was answered by a business who transferred me to voice mail. When they called me back a few days later, the lady on the phone informed me that they have no personal information of my own. The addresses were printed by my physicians office and they sent the mailing out on their behalf. So my next call was to Jay Federman, MD. Practice Name:, Ophthalmic Partners of PA. In this case, I called the Voorhees, NJ office to ask them why they are sending me these flyers. I spoke to the office staff who informed me that they had no idea about the mailing, and it may have been done by another of their offices. The doctors do float between offices, and it is a very large and busy practice. I figured I would speak to Dr. Federman at my next appointment.

Well the next appointment came, I was at the office, and it was booked too soon. So we rescheduled the appointment and I walked out. The flyer goes in my binder, not to be touched again till after the holidays. Today, I am finishing up a back log of notes and record keeping, and out pops the flyer. And with it all my notes.

This time I call the Macula Vision Research Foundation and a lady answers the phone directly. When I asked her about the flyer, she gives the same story as before. The physicians office has the information, they print the labels, and send out the flyers. But wait, this flyer does not have a label - it is printed on with my address. Oh, well thats different. We got your information from a staff member at Ophthalmic Subspecialty Consultants. Can you tell me who in the office gave you that information? “No, I don’t want to give you her name”

Shocking that these people think it is okay to get my information from one of my physicians, take two calls to find out that they actually have it in their own systems, AND refuse to tell me who gave it to them or when.

I did ask them if they have given my information to anyone else, and in a rather insulted voice she told me that “we never sell or share any information”. I give that statement a very low level of confidence given how they obtained my information.

At this point, I ask the same question as last time - do you have any of my personal information? ”Why yes, and if you just spell your name”. This is a total 180 from my previous call where they pleaded ignorance and no guilt in not sending out the flyers, not having my information, and telling me to go talk to my physician. She gets my name, looks it up, and tells me she removed it from their system. At this point, I do not believe them for one minute. There is zero credibility on the part of Macula Vision Research Foundation and their handling of my personal information, stolen, obtained illegally or legally from what ever source. Zero credibility.

Do not donate to the Macula Vision Research Foundation. Do not donate or trust any information coming from their, their mailings or their web site mvrf.org. Their use of the name Mary Betty Roeder to send out the mailings for free is clearly a way for them to steal postage from the USPS. Now was Mary a speaker at this event? Yes, she was the speaker for the 3rd and 4th topics. So I am sure there is some legal justification for their using the steal postage from the USPS rate. But was this a solicitation? Yes. Was it bulk mail? Yes. Was it sent to anyone who requested it? No. Hell no.

If you have every been to a physician for retina detachment, macula issues, or any other related eye conditions, I urge you to immediately contact mvrf.org at their toll free number 866-462-2852 and have them remove your name from their records and stop any sale or use of your stolen personal identifiable information they may have obtained illegally or without your express written approval. By them or any other related thir dparties

These type of scum bag tactics by organizations hiding under the righteous umbrella of being a charity is bullshit that has to be stopped. Don’t let your personal information be stolen and used by these people or anyone like them.

Macula Vision Research Foundation
Five Tower Bridge
300 Barr Harbor Drive, Suite 600
West Conshohocken, PA 19428-2984

Phone: 610-668-6705
Fax: 610-667-1459
Toll free: 866-462-2852 (866-4MACULA)
Email: lea@mvrf.org

Directors
Karen and Herbert Lotman

Executive Director
Lea S. Bramnick

If you have been the vicitm of their tactocs and attended a seminar, and gotten some benefit, bad for you. Good that you obtained some useful knowledge, but bad that your personally identifiable information was taken from you and you did not know. Identify theft is everyone’s concern. And you need to you that you have been victimized by these people and their conspiritors.

Your physicians office had you sign a release saying that it was okay to share your information with this group? Then shame on your physician for not spelling out what these third party related groups means, and giving you a very clear option to opt out on this sort of garbage. It is your information, and your privacy. Everyone has to respect that.

Filed Under: vision

Tags: business, charity, junk mail, vision